I’m A HIPpy Mid-Year Update
We are happy to share that it has been a very productive start to the year at BC Children’s Hospital. Your incredible generosity has already helped impact advances in hip care and research both locally, and on a global scale.
Since its founding in 2017, I’m a HIPpy has raised over $200,000, allowing Dr. Mulpuri and his team to expand on their research, patient care, and advocacy initiatives. This work has already helped them make strides in improving hip health, mobility, and quality of life for children with hip dysplasia and other serious hip conditions.
Some milestones that have been made possible by I’m a HIPpy donations are:
- Employment of a full-time scientific researcher. This researcher is an integral member of Dr. Mulpuri’s team, and is responsible for developing studies as well as building and managing the International Hip Dysplasia Registry (IHDR). This registry is currently the largest registry of its kind in the world. Data for this registry is being contributed by 23 centres around the world including Boston Children’s, Children’s Hospital of Philadelphia, Sick Kids Toronto, and Stanford University.
- Initiating the development of a standardized method of testing for hip dysplasia (DDH). While still in its beginning stages, having a standardized testing method for DDH will ensure that all children, regardless of location or socio-economic status, will receive the same quality of care. One of our goals is to reduce the number of delayed hip dysplasia diagnoses around the world. Generally, the earlier hip dysplasia is diagnosed, the treatment options available are more efficient and less invasive. We made significant progress in collaborating with pediatric orthopaedic societies in India and China.
- Launch of an integrated clinic. This clinic looks at how to reduce patient clinic visits from three (initial consultation, radiology, and follow up appointments) into one single visit. This is aimed at reducing the stress on both the patients and their families, as well as reducing the cost to our health care system.
- Purchase of a portable handheld ultrasound machine. We are the first centre in the world to be testing this device for hip dysplasia screening. This machine will not only allow for quicker screening, but is also very useful in low resource areas where access to an ultrasound machine or other radiology equipment is not readily available. We are currently developing protocols to test the machine in low resource areas.
- Establishment of patient and family support services. I’m a Hippy has helped improve engagement, support, and interaction amongst patients and families in similar circumstances. We also have a medical team that has been available to respond to questions and provide support to families in need.
Thanks to our growing HIPpy community, our mission to improve hip health, mobility, and quality of life for children with hip dysplasia, is becoming a reality. However, there is still much more to be done, and we hope you will continue on this journey with us. On that note, please save the date for our 2nd Annual I’m A HIPpy Gala, on Oct. 12, 2018, at the Robert H. Lee Alumni Centre at UBC, as well as our Hip Heroez Obstacle Course Challenge for children on Oct. 14, 2018. We look forward to seeing you in the fall, and many thanks again for your kindness.
The I’m a HIPpy Team